My house is in a state of chaos. Julian, my oldest son, leaves for a summer job in the Appalachian Mountains of North Carolina on May 1, while Caeleb, my youngest son, graduates high school on May 18. My wife, Cazandra, and I feel the unspoken tension that both…

Added to steroids, rituximab seems to be as safe and effective as cyclophosphamide therapy at controlling bleeds and wiping out antibodies against clotting factor VIII (FVIII) in adults with newly diagnosed acquired hemophilia A (AHA), according to a Phase 3 clinical trial. However, data from the CREHA…

As my 30th birthday approached, I found myself grappling with a whirlwind of emotions. Unlike my husband, Jared, who greeted his own 30th with gratitude for another year of life, I was consumed by crippling anxiety. The looming pressures of being a mother and caregiver — Jared has…

As someone who typically sees the glass half full, I’ve found myself to be the go-to adviser for my nephews, especially when they’re having a full-blown panic attack, which unfortunately seem to be increasingly common among young people, at least in my family. Whether they’re venting about their jobs or…

Immune tolerance induction (ITI), a type of treatment that’s designed to eliminate neutralizing antibodies, or inhibitors, against clotting factors for people with hemophilia A, may work just as well across different racial and ethnic groups, a study finds. The findings don’t “support the hypothesis that ITI response varies according…

Almost 27 years ago, I received the title of caregiver when my first son, Julian, was born. Not realizing that my role in his life would change over the years with his hemophilia, I gladly performed my duty and helped him navigate the waters of medical care. Ten…

My husband, Jared, and I have been binge-watching “House” lately. Watching this mid-2000s medical drama as a couple living with chronic and mental illness is a fascinating experience, since we’re no strangers to hospitals and medical procedures. One of the episodes we found compelling featured a…

Navigating social media for information about hemophilia and other health issues can produce mixed results, but amid the noise are shining beacons of knowledge and support. In honor of Bleeding Disorders Awareness Month, which is now coming to an end, the following are five exceptional social media accounts…

I’ve always had a naturally good “firefighter mode.” As a child, I was inventive and resourceful. If I accidentally left my homework at home, I could do it over in minutes. In high school, I was the go-to person for completing group projects under pressure. This pattern continued well into…

In observance of Bleeding Disorders Awareness Month, the integrated infusion therapy provider BioTek reMEDys is calling attention to the importance of safe treatment use and education among people with conditions such as hemophilia and von Willebrand disease. Each March, the bleeding disorders community and supporters seek to heighten…