A few years ago, I woke up to find my right breast swollen, hot, red, and extremely painful. Beneath the skin was a lump that felt about the size of a golf ball. I’d had mastitis before, in the other breast, so I wondered if this pain could be…

One thing that struck me over the head when I became a parent was an awareness that I bring my whole self to the table. When treating bleeds and other surprises, I show up with what I know — no more, no less. I cannot respond to my child beyond…

There’s often a children’s time at church when the kids race up to the front and sit with the pastor, where a message is geared to the children. When my husband leads this moment during worship, he asks questions and even takes the kids on “field trips” around the sanctuary.

Hello, hiring managers and human resources (HR) professionals! I’m writing this column to you, as the spouse of a person with disability (PWD). My husband, Jared, has severe hemophilia B and a seizure disorder, and we worked together at the same company for a year. I’ve also seen him…

Monsters come in all shapes and sizes. Some take the form of needles that terrify young children. Others terrorize us as we battle chronic illnesses. Scary creatures reveal themselves and change us because of the horrors they bring into our lives. Ghosts and shadows leave us breathless and…

When my husband, Jared, has a hemophilia bleed, we know what to do. We immediately implement the RICE method of Rest, Ice, Compression, and Elevation. We also add to that list factor infusions and the monitoring of Jared’s condition. Hemophilia is complex, but there’s a strategy for managing it.

Blood visibly present in urine — called macroscopic hematuria — considerably increases the risk of hypertension in hemophilia patients with a family history of high blood pressure, and is not a “benign” condition for this patient group, a study reports. The study, “Macroscopic hematuria as a risk…

Hemgenix (etranacogene dezaparvovec), the first and only gene therapy approved for adults with hemophilia B, has won this year’s Prix Galien USA award in the category of Best Product for Rare/Orphan Diseases. The award — the nation’s top prize for leading-edge advances in life sciences — was received…

Baby Cittie turned a month old on Feb. 18. I’ve noticed that her leg has sported a largish gray spot resembling a bruise since birth. Although it has faded, it still hasn’t gone away entirely. As a first-time mom, I am naturally paranoid. I notice…

The past two weeks have been especially busy as I produced and directed the musical “Honk! JR.” in my community. Many children who’ve worked with me for years participated in the production. I can’t count the number of children’s theater programs I’ve directed over the years, but I do…