About seven years ago, my youngest son experienced the worst of the worst regarding hemophilia. My boy missed most of his second-grade year — 128 of approximately 180 instructional days — because of continuous breakthrough bleeding episodes followed by extended hospital stays. Unfortunately, we could not get ahead of his…
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Sometimes, conversations lead me to reveal that my boys have hemophilia. It is usually a harmless conversation without any agenda. However, I am not always sure how to reply when someone tells me how sorry they are to hear that my boys have an illness. It often depends on…
Needle. Vein. My eyes shift back and forth. Needle. Vein. Which vein is large enough to hit without blowing, but small enough to anchor well? Tourniquet, needle, vein, syringe. I hate infusing. I HATE this. Well, tonight I definitely hate this. Maybe I haven’t eaten enough, or perhaps it’s due…
I’ve been diving deep into entrepreneurship lately. I’m striving to learn everything I can about business — and trying to understand its darkest secrets — in hopes of attaining a higher level of success. I consider this a crucial step toward achieving one of my biggest and most important life…
Therapeutic plasma exchange (TPE) was found to reduce bleeding and ease disease symptoms in six people with acquired hemophilia A (AHA), a case series reported. These findings support TPE — in which the liquid part of blood is replaced with substitute plasma — as an alternative treatment option in…
InSourceRx is partnering with the National Hemophilia Foundation (NHF) to help those with inheritable blood disorders, such as hemophilia, better afford medications. InSourceRx is a pharmacy discount card company that teams up with nonprofit and patient advocacy organizations to provide discounts for essential medicines and supplies. Blood…
Spiral notebooks, pencils, glue sticks, and highlighters make my heart happy. These items signal the beginning of the school year. I have fond memories of buying new pencil boxes and the perfect backpacks for my sons. I always look forward to taking them shopping for school supplies. Now that my…
Adults across the general public in Canada think an under-the-skin injection treatment for hemophilia A would be preferable to those needing to be infused intravenously, or directly into a vein, a study based on interviews reported. Results of the analysis, sponsored by Roche Canada and conducted by Broadstreet…
It was a celebratory day for the Philippines on July 26 when female powerlifter Hidilyn Diaz won gold at the Tokyo Olympics. It was her country’s first ever Olympic gold medal. I feel proud as a Filipino that our country has earned such a high honor. But for more…
Many years ago, when hemophilia came into my family’s life, rearing its ugly head like a lion ready to devour its prey, we held on to anything we could. As the chaos of chronic illness overtook our lives, my wife and I made plans to help our children manage their…