I started writing for Bionews, the publisher of Hemophilia News Today, almost three years ago. However, it recently dawned on me that I never mentioned why I named my column “In the Twinkling of an Eye.” While amazingly simple on the surface, the answer has deep layers that may…
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Roctavian, an investigational gene therapy, significantly reduced bleeding rates and the need for other treatments in men with severe hemophilia A over at least one year, top-line data from a Phase 3 clinical trial show. The therapy’s durability in sustaining factor VIII production at levels necessary to…
Two weeks ago, my daughter helped me move a small refrigerator. I had the front end and she had the back, which was open and exposed various parts. When we arrived at our car, I noticed her finger was bleeding quite a bit. The cut appeared to be long but…
When I was in my early teens, a family member introduced me to the law of attraction. According to this “law,” thoughts determine the outcome of one’s life. Therefore, if your thoughts are positive, positive things will happen in your life. I was young and determined to try it…
Parents of children with hemophilia in the U.K. are generally aware of gene therapy, but many lack both the knowledge necessary for an informed decision and confidence regarding this form of treatment, according to a questionnaire and interview-based study. Most of those interviewed were unaware that gene therapies are…
In our culture, we learn at a very young age to make resolutions at the start of a new year. Unfortunately, the odds of breaking our goals are much higher than the odds of fulfilling what we set out to accomplish. UAB Medicine News reports that less than 8% of…
A new year is always filled with possibilities and hope. After living through 2020, most people are looking forward to what is yet to come. While I am not one to make resolutions, there is one thing I will be working on this year. It does not involve me,…
Learning to Put ‘Me’ Before ‘We’
It isn’t that I can’t be alone. I am an introvert. As such, I can self-entertain for hours. I like spending time with my own company. I find many ways to occupy my time. Hobbies abound — I write, knit, research genealogy, geocache, record podcasts,…
I am someone who appreciates certain finer things. As a jeweler, I understand the value of fine metals, gems, and diamonds. As such, I can’t help but dream of owning attractive and valuable jewelry pieces that will ultimately serve as investments. I’m also drawn to fine timepieces, and admit to…
Would You Choose Another Path?
Usually, as the year comes to a close, we turn our attention to resolutions. It’s often a reflective time, when the prior year’s events and actions come under scrutiny. The most common resolution usually has something to do with health and fitness. But 2020 is far and away a different…