Life had been running smoothly for a while. No major bleeds, no medical scares — just the comforting rhythm of our daily routine. But as life with hemophilia goes, that peace was bound to be interrupted at some point. It came this time in the form of a…

Last night, I dreamed that I attended a doctor appointment for my wife, Cazandra. It was a follow-up to discuss lab results requested at the initial meeting. The doctor entered the room and shared treatment strategies. She told Cazandra that she wanted to try a new medication to help…

Novo Nordisk has submitted an application to the U.S. Food and Drug Administration seeking approval to market Mim8 (denecimig), an injection therapy for preventing bleeds in people with hemophilia A with or without inhibitors. If approved, Mim8 would be sold as a single-use, prefilled disposable pen for subcutaneous,…

The adventure of life is filled with ups and downs. Focusing on a word instead of on New Year’s resolutions can be a powerful practice when navigating a bleeding disorder. A focus word serves as a daily reminder and source of motivation, providing a lens through which to…

There is a children’s picture book called “How Big is Baby?” The response to the baby is, “Baby is sooo big!” It is a great book as it empowers our children to know that they are a large part of life. We remind them that the love we…

Prophylactic (preventive) treatment for hemophilia A and B is generally more effective than on-demand treatment in reducing the frequency of bleeding, but the benefit is not as clear in patients who have developed inhibitors that limit how well replacement clotting factors work. That’s according to real-world data from…

As my 30th birthday approached, I found myself grappling with a whirlwind of emotions. Unlike my husband, Jared, who greeted his own 30th with gratitude for another year of life, I was consumed by crippling anxiety. The looming pressures of being a mother and caregiver — Jared has…

My 24-year-old son, Julian, lives out of state, where he attends college and works as a barista. He pays his bills and “adults” well, making me immensely proud of him. When he was a teenager, I didn’t think I would live to see his adult years. Like most teenagers who…

I love the smell of a freshly painted room. The roller soaks up the new color as it moves around in the pan, waiting to be rolled onto the wall in big, broad strokes. The walls must desperately need a fresh coat of paint to soak up the new color…

Preventive treatment with Hemlibra (emicizumab) is safe and can effectively prevent bleeds in people with mild or moderate hemophilia A, according to an interim analysis of data from the HAVEN 6 clinical trial. Results will be presented at the annual meeting of the American Society of Hematology (ASH)…