In an instant, things can change and redefine who we are. One minute life appears to take us down one road, and then we encounter something that brings us toward an entirely different destination. Whatever happens, we know that life will never be the same again, and our entire perspective…

Special education. Those two words strike fear into the hearts of many parents. “But my son doesn’t need special ed!” I know, because I was one of those moms. When my oldest son Julian, now 22, was in elementary school, the idea of a 504 plan — based…

Sometimes chronic illness holds us completely captive, and we lose moments due to pain or other complications. My family is no exception, as my youngest son experienced one year. He spent almost every holiday between October and February in the hospital. I helplessly stood by and watched my son lose…

I know people who constantly run around to deliver their kids. Soccer, swimming, acting, tennis, dance … and they find little, if any, time for themselves. We lived in the city for the past six years, and running my kids to sporting events was not the norm.

Both of my sons packed and all three of us MacDonald guys were ready for what my youngest calls a “Daddy and Son Mad-capped Adventure.” My wife had an out-of-town speaking engagement, so that meant the youngest had to travel with my oldest and me. We were on our way…

We are in a new town. A fresh start. My mighty warrior already loves the landscape that allows him to catch frogs and snails and marvel at the rain. When we lived in the desert, the eyes of our little boy didn’t see these things as easily. While…

XaTek announced that it has raised $9.1 million to advance the development of ClotChip — a portable test designed to rapidly analyze, using  a single drop of blood, the ability of a person’s blood to clot. The capital was raised in a series A financing round, which marks a company’s first significant…

BioMarin Pharmaceutical Inc. is partnering with digital content agency Believe Limited to produce a three-day musical workshop for young members of the bleeding disorders community. The “Breaking Through!” musical theater intensive, the first program of its kind, will be held Nov. 9-12 in New York City, and aims at teaching…

My condition, hemophilia, has always been an enigma for me. It’s been a huge challenge to my personal development, physical health, and mental stability. I wanted to believe that this disease was given to me for a reason. However, as the years progressed, I was wracked with hemophilia complications, and…

My family just moved. My husband’s job has led us on another adventure. With moving comes boxes. They are everywhere, and we are in the midst of finding our way in a new house, and a new town. So far, things have gone well despite the stress of moving.