My wife and I learned early to be careful when discussing the struggles we share in caregiving. Sometimes we get tired and want to complain, but we must remember that our children hear and see us. If we say something in total frustration, our children might blame themselves…

The unimaginable has happened. My youngest son, Caeleb, had his port removed. Of course, when someone with a bleeding disorder has a port, it’s usually not forever, so why is it a big deal for my 13-year-old son? This was his seventh port. He has had…

New evidence suggests that a parameter called FVIII-EC50 has potential as a new way to predict the response of an individual with severe hemophilia to preventive treatment with FVIII, according to a small study. The study “Evaluation of EC50 of factor VIII as predictor of prophylaxis efficacy in patients…

So, we are in the car. Everyone is in their respective seats. We are all looking forward to our vacation. The car is filled with suitcases and excitement. Then, I hear the dreaded sentence from my youngest boy: “Daddy, my leg hurts.” My wife and I look at…

Looking at myself now, my younger self never would have expected me to be where I am. Recalling my younger years, I remember having anxiety about being alone when I grew up. I always thought I’d have a hard time finding a partner and that my dating life would be…

“I’m so sorry. What can I do? I am here if you need me.” When we hear bad news about someone we love, most of us struggle to find the right words to comfort the one hurting. Sometimes, the best words are no words at all. It just…

Every family speaks their own language. Mine certainly does. It is like a secret code that is unbreakable outside of our house, used to inform family members how we feel about an issue or event. It is done so subtly that no one else is aware of the information…

Baby Cittie turned a month old on Feb. 18. I’ve noticed that her leg has sported a largish gray spot resembling a bruise since birth. Although it has faded, it still hasn’t gone away entirely. As a first-time mom, I am naturally paranoid. I notice…

Scientists successfully combined the gene-editing tool CRISPR-Cas9 and a special type of virus to deliver corrected genes to restore the function of the coagulation factor IX (FIX) gene in young mice with hemophilia B. The study, “Long-term correction of hemophilia B using adenoviral delivery of CRISPR/Cas9,”…

In past columns, I discussed my frustrations when anger rears its ugly head out of the shadows of my consciousness and takes hold of me. It isn’t pretty, nor is it the best choice to make. I wasn’t prepared to handle the overwhelming emotions that came over…