Last Sunday, I preached a sermon about the Old Testament story of David slaying the giant Goliath. David was young and much shorter than the very tall Goliath. The odds were against David, yet through divine intervention, he did the unthinkable and took Goliath’s life with one stone. His…

After one year, the investigational gene therapy AMT-061 (etranacogene dezaparvovec) continued to safely and effectively increase factor IX (FIX) activity and prevent bleeds in men with moderate to severe hemophilia B, according to new data from the Phase 3 HOPE-B trial. The men participating in the study did…

I gaze at the glorious sunrise as I take off in my red RAV4. On this particular trip I plan to make my way down from my home in Northern California to Los Angeles. My daughter and I will most likely push through the 12+ hour drive in…

Intensive treatment with factor VIII, the clotting protein missing or defective in patients with hemophilia A, is associated with a greater risk of inhibitor development among patients with non-severe disease, a study has found. The findings highlight the importance of closely monitoring these patients in order to prevent or…

Spending on treatments for hemophilia by Medicaid, a U.S. government health insurance program for select groups, more than tripled from 2005 to 2019, an analysis reported. Its researchers expect this finding will help state agencies with decisions regarding treatment coverage based on their Medicaid budget, given that the program…

Starting or switching to prophylactic, or preventive Hemlibra (emicizumab) may lead to a significant reduction in treatment-associated expenses for hemophilia A patients in the U.S., a real-world study reported. These findings highlight the cost-benefits of using Hemlibra — and may help future cost analysis studies in assessing new…

A 70-year-old man with severe hemophilia A was treated for COVID-19 while receiving prophylactic, or preventive, treatment with Hemlibra (emicizumab) to lower his bleeding risk. This case underscores the importance of close cooperation…

There was a time when hemophilia ruled my family’s every waking moment. My husband and I set out to accomplish two goals each day: going to work and taking care of our youngest son, Caeleb. It was nice when Caeleb could go to school for an entire day, but…

As a woman with hemophilia who has a proper diagnosis and a fantastic treatment plan, I do not take my health for granted. I feel fortunate and blessed to have reached a place where coping with bleeds and pain is no longer a constant focus. I’m normal! (Well,…

Over the past couple of weeks, my husband, Jared, and I have been fully occupied with home improvements. We did a complete revamp of our bedroom, from repainting the walls to changing our old and deteriorating bed. We also replaced other furniture that was falling apart or no longer…