G Shellye Horowitz, a hemophilia patient advocate, shares how learning to understand and share your bleeding story can help you communicate more effectively with your healthcare team, advocate for your needs, and build confidence in managing hemophilia.
Transcript
Over time, as I’ve educated myself about my bleeding disorder, I feel like I can speak to my bleeding story with more confidence.
And I really think that when we have issues with our care teams, it’s because there’s a disconnect in the understanding of our bleeding story.
So understanding how to continually refine and share my bleeding story so that my providers understand what’s happening on a daily basis has been, I think, the single most thing that has boosted my confidence.
It’s one of the biggest recommendations I can give to anyone with a mild bleeding disorder. “Understand and share your bleeding story.”
