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Navigating insurance challenges in hemophilia care

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Handling pain

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Thomas Graham, a hemophilia patient advocate, shares his experience fighting insurance barriers and why patients must advocate for their own care.

Transcript

Directly interfacing with my insurance company in any form, fighting them on a drug that I needed, that I’ve been on for years. Having to actually go into the trenches.

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All a patient advocate can do for you is give you the tools to fight, and help remind you what you can do. You have to be the catalyst for change because it’s your account. It’s your body. It’s your VIN number, right?

It’s fighting with my insurance company and then having to, as I get older, continue fighting with more companies.

More videos

Understanding how hemophilia treatments work in your body
Hemophilia treatment should keep up with your life pace
Demand explanations to unexplained hemophilia pain
The keys to powerful self-advocacy with hemophilia
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