Why Shared Data Is Important for Furthering Hemophilia Research



This video from the Centers for Disease Control and Prevention takes a look at hemophilia and explains what the blood disorder means for those who suffer from it.

MORE: Three tips for coping with a hemophilia diagnosis. 

Hemophilia patients and caregivers share how hemophilia affects their everyday lives and medical professionals discuss how important shared data is to improve treatment and care for those living with the disease. Shared data helps researchers to better understand trends, determine the rates and severity of disease complications, monitor the safety of blood products, assess quality of life and identify any health issues that need to be studied further.

MORE: What to know about hemophilia in women.

Hemophilia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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