My husband, Jared, and I were recently talking about Rare Disease Day, which falls on Feb. 28. As a person with hemophilia, Jared has faith in its purpose of raising awareness about rare health conditions and the people who live with them. Having dabbled in hemophilia and mental health…
HemoWife - a Column by Allyx Formalejo
I recently asked my husband, Jared, who has hemophilia, a this-or-that question: “Would you rather have many insignificant bleeds several times a month, or big bleeds several times a year that keep you bedridden for an entire month?” Jared chose the former, and I agreed. As a busy mom and entrepreneur,…
When I tell people I’m married to someone with hemophilia, I get different reactions. Some people are genuinely curious and want to know more about my husband’s condition. They’ll ask several questions about the hows and whys of his bleeds, and are often curious about treatment. On the other hand,…
After an entire year of getting little exercise, I’ve finally decided to work out again. I’d gone several months without much physical activity, so I’m starting with jump rope fitness for body conditioning. So far, everything’s good. I’ve had to rearrange my schedule quite a bit and take more time…
“Motherhood is messy. And challenging. And crazy. And sleepless. And giving. And still unbelievably beautiful.” — Rachel Martin For me, motherhood is all of these things that blogger and author Rachel Martin suggests it is. Quite often it is tiring. Every day, I have a lengthy to-do list to…
In our work as professional online sellers, my husband, Jared, and I occasionally encounter difficult clients. Sometimes they send several messages to our social media channels outside of our office hours. Or they’ll threaten to leave a negative rating because of an odd hiccup in our services. And don’t…
When I was in my early teens, a family member introduced me to the law of attraction. According to this “law,” thoughts determine the outcome of one’s life. Therefore, if your thoughts are positive, positive things will happen in your life. I was young and determined to try it…
I am someone who appreciates certain finer things. As a jeweler, I understand the value of fine metals, gems, and diamonds. As such, I can’t help but dream of owning attractive and valuable jewelry pieces that will ultimately serve as investments. I’m also drawn to fine timepieces, and admit to…
Splash! A kid’s plastic drinking cup falls to the floor, spilling water all over. “Oh, no!” a toddler exclaims, noticing the accident. She picks up a rag and runs it over the wet spot on the ground. “Wipe,” she says. This is a common scenario in our house these days now…
Finding Contentment in Change
Want to be happier and more content in life? Embrace change, a study published in The Review of Economic Studies notes. I did a double take when I first read about the study at cnbc.com. Oftentimes, change and contentment are presented as completely opposing ideas. The stereotypically “content”…
Recent Posts
- We can find signs of calm in the storm if we remember to look
- New data suggest gene therapy may reach more hemophilia B patients
- How life changes when the caregiver switch flips on
- January’s reset means the system restarts, but our bodies do not
- People with hemophilia face 46% higher risk of bone fractures