Columns

I surprised myself when I was in Montreal for a hemophilia conference in 2022. I decided to stay an extra day after the event to explore the city. I have to say, I found the most amazing gluten-free French pastry shop! The croissants and pain au chocolat were to…

When people hear the word “hemophilia,” they usually picture bleeds, factor infusions and other treatment routines, and trips to the hospital. Those things certainly shape the condition, but they’re not the whole story. Over the years, I’ve noticed something that feels harder to explain, yet…

For most people, taekwondo is about discipline, confidence, and the long path toward a black belt. For Tara Blakely, it became something else entirely — a story of interruptions, detours, motherhood, misdiagnosed bleeding, and the quiet strength required to begin again when life keeps pulling you away. Tara began her…

I really hate asking for help. I have several theories why, but mostly, it boils down to a fear of inconveniencing others. Perhaps there are deeper causes, like needing to learn that I am worthy of accepting it and understanding that everyone deserves to have their needs met, both physically…

For years, writing about women with hemophilia and other bleeding disorders has meant telling stories of delayed diagnoses, silent pain, and lives shaped by the absence of care. In many ways, it still does. But lately, I think something has shifted. The change has been gradual, and I don’t…

When I look back on the things my husband, Jared, and I did in our 20s, I sometimes wonder how we managed to get through them without more emotional or physical scars. We were young, impulsive, and convinced that nothing too serious could happen as long as we “managed things…

In my work as a hospice chaplain, I take the same routes when I drive to patients’ homes, assisted living facilities, or hospitals. Without thinking about changing lanes or adjusting my speed, my mind settles into autopilot, and I often arrive at my destination without realizing how far I’ve…

It’s finally happened: validation. The battle to get here was rough, but perseverance paid off. Seeing “Shellye, a patient with superior mesenteric artery syndrome (SMAS), presents for follow-up visit prior to surgical repair” written in my medical records made me want to cry. I felt the same way when…

When you live with a bleeding disorder, you get used to explaining yourself. You learn to walk into an emergency room ready with a treatment letter and a mental script of your medical history. You learn to minimize pain, explain bruises, fight for treatment, and reassure medical professionals that, yes,…

I rumbled around the house one evening, wrapped in my favorite oversized sweatshirt and cozy socks, the comfort like a warm embrace. I left my latest craft, hands marked with thread and bits of fabric, to refill my iced tea. As I made my way to the kitchen, I left…