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What Does It Mean to Be Perfect and Whole?

Many years ago, friends told me about a workshop they attended, which addressed newly diagnosed patients with bleeding disorders. As they talked about the class, I agreed with everything I heard until one of the facilitators said that with a new diagnosis comes a sense of mourning. “Yes,” I…

Motherhood Can Be Stressful, but It Also Keeps Me Sane

“Motherhood is messy. And challenging. And crazy. And sleepless. And giving. And still unbelievably beautiful.” — Rachel Martin For me, motherhood is all of these things that blogger and author Rachel Martin suggests it is. Quite often it is tiring. Every day, I have a lengthy to-do list to…

What Does Hemophilia Look Like?

What does an illness look like? Sometimes a bald head, pale skin, or a mobility device are outward signs that someone has an illness. People would never know my sons have hemophilia by looking at them today. My oldest son, Julian, is 24. He lives on his own,…