For many years we tried to overcome my younger son’s reaction to factor VIII. No matter which medical product we tried, we ended up with the same results. He would break out in hives early in the infusion. We learned that my son had developed an allergy to factor VIII,…

On Monday, the preschool at my church celebrated Halloween, complete with little goblins, ghosts, and other assorted creatures. The children bragged about their costumes, saying, “Look, Pastor Joe, I’m a princess. Look, Pastor Joe, I’m a ferocious Samurai warrior.” They looked terrific, and I asked them if they wanted a…

I recently received an intriguing piece of jewelry in the mail. It’s a prototype of a design I hope to sell someday. But I loved it so much that I wanted one for myself. The design is rather goth-themed, featuring a coffin-cut black onyx gem in the center flanked…

My oldest son, Julian, recently approached me and asked, “Dad, can you play this song for me on the piano? I have to post a singing audition tonight.” Panic filled my body. I responded, “Oh, Julian, this song has too many fast chord changes.” He walked away, trying to find…

It isn’t that I can’t be alone. I am an introvert. As such, I can self-entertain for hours. I like spending time with my own company. I find many ways to occupy my time. Hobbies abound — I write, knit, research genealogy, geocache, record podcasts,…

Rare diseases deeply affect not only the children who experience them, but also their healthy brothers and sisters, as their parents can attest.    Two entries in November’s “Disorder: The Rare Disease Film Festival” will focus on what siblings go through, according to the San Francisco festival’s co-founder,…

Last week, I visited an outstanding church member in a local hospital. When I arrived, I saw a friend in the lobby, looked into her eyes, and knew that something was dreadfully wrong. She explained that her baby suffered unexplained medical issues and required immediate care. Parents whose children are…

Kevin Leurquin is from Green Bay, Wisconsin. He enjoys spotlighting positivity through his food truck, Captain Quesadilla, and speaking publicly about “tapping into your inner awesome.” Kevin is passionate about helping others and being adventurous. He stays active by working out, golfing, trail running, and walking his dog, Summit. His…

As caregivers of loved ones managing chronic illness, we face questions that, when first heard, knock us to our knees. For my family, it was not so much a question as a statement. When “MacDonald the Older” was 4 years old, we set up to infuse through his port-a-cath…

With Valentine’s Day over, it’s amazing to look back at the “Love Month” celebrations my husband, Jared, and I have had since we first started dating. In our six years together, we’ve had our share of Valentine’s Day celebrations. Some stood out more than others. One example is the time…