Showing 2830 results for "hemophilia A"

Horrible Periods Are Not Necessary

We grow up hearing our mentors — women we respect and love — regularly complain about menses. Periods seem to be a fairly universal inconvenience and bother. However, I believe there is a fine line between inconvenience and suffering. Your period should not make you miserable. Movements to…

Sometimes I Need to Take My Mind Off You

The new year is a wonderful time. To many of us, it’s a symbol of fresh hope and new beginnings. I greeted January with many dreams and the hope that they may come true. After an eventful series of moments leading up to New Year’s Eve, my husband, Jared,…

2019 Was Rough, So I’m Embracing a New Year

With 2019 behind us, it’s time for everyone to start anew and welcome 2020 into their lives. It’s hard to be fond of 2019 considering the impact my chronic illness had on my life. I spent practically a third of the year on bed rest because of severe…

Remembering the Diagnosis

I received an email from a friend I hadn’t heard from in some time. She told me that her nephew and his wife just had a baby and he has been diagnosed with hemophilia. She had ordered my book to send to her niece and was hoping I would…

I’m Thankful for Lessons Learned

My family entered the hemophilia community more than 23 years ago with the birth of my oldest son. During our time with the bleeding disorders community, my wife and I learned to access ports, treat and perform peripheral sticks, and negotiate difficult circumstances. We did not receive a manual titled…

Enjoying the Gifts and Counting Our Blessings

As early as September, colorful Christmas lights adorn all sorts of spaces in the Philippines. Families begin decorating their homes and stores start to roll out out holiday promotions: holiday-themed drinks, planners for collecting stickers — you name it. At the onset of such traditions, one can feel the so-called…

A Quick Look Backward Before Moving Forward

As the year draws to a close, I cannot help but review the successes and failures of the past 12 months. How do I continue to honor the many roles that I play as a husband, father, caregiver, and pastor? Where is there room for improvement? How can I improve…

Looking Ahead to the New Year

As I look back on where I was at this time last year, I can honestly say that 2019 has been a fantastic year. My health has improved tremendously. My book, “Dear Hemophilia, Finding Hope Through Chronic Illness,” has been published. And most importantly, my sons with hemophilia have…