The Hemophilia Federation of America (HFA) has been awarded a $250,000 research grant through the Eugene Washington PCORI Engagement Awards Program to support the HFA’s PRIDE Project through training and education of bleeding disorder community stakeholders, including the hemophilia community. The Awards Program is an initiative of the Patient-Centered…

Hemophilia is a rare disorder where the person is unable to stop bleeding due to a lack of certain blood clotting factors. It’s a genetic disease that’s passed down through the X chromosome. Almost all people with hemophilia are male, however, women can be carriers of the disease. MORE: Explaining hemophilia carriers.

The European Medicines Agency (EMA) has granted orphan medicinal product status to SB-525, a clinical stage gene therapy candidate under development for the treatment of hemophilia A, according to Sangamo Therapeutics and Pfizer. The announcement coincides with the opening of patient enrollment for a Phase 1/2…

Prior to the 1970s, people with hemophilia were encouraged to refrain from any form of exercise or physical activity out of fear they would injure themselves. However, the lack of exercise led to obesity and lower bone density and general overall health problems. Nowadays, people living with hemophilia are encouraged to participate in…

Eating well is important for everyone, but particularly for those living with hemophilia. Eating a diet that encourages strong bones and muscles and helps keep you at a healthy body weight is essential. MORE: Young boys explain what it’s like to live with hemophilia Obesity is becoming a major problem when it…

Forty percent of men with hemophilia who responded to a survey said the condition can weigh on their sex life, although University of California researchers cautioned that the 20-person sample was very small. Some of the respondents said they can experience bleeding from sex. In addition, the joint stiffness and joint…

To help prevent bleeds in hemophilia patients, many people living with the disease need to have infusions of clotting factor. In this video from infuzrTV, we meet super cute 5-year-old Brandston. Brandston has severe hemophilia A and needs to have clotting factor infusions on alternate days. MORE: …

On May 18, Roger Ailes, the former CEO of Fox News passed away at his home in Florida after suffering a fall. The 77-year-old was diagnosed with hemophilia at the age of two, after he fell, bit his tongue and couldn’t stop bleeding. MORE: Six self-care tips for people living with…

Decades ago most hemophilia patients died young. Advances in treatment have led to them living about as long as the general population, which means that for the first time, doctors are facing the challenge of caring for aging hemophiliacs. A key problem is that in the days before treatment breakthroughs,…

Life with hemophilia can be challenging but there are ways that you can manage the disease to ensure your child leads as normal a life as possible. To help you navigate your child’s illness and help prevent bleeds, we’ve put together a list of tips. MORE: How to prepare for your child’s…