This Father’s Day, as we celebrate the role of fathers in our lives, I can think of no one more deserving of recognition in our bleeding disorders community than Iván Girón. At Genentech’s Rare Blood Disease Summit in San Francisco last year, I was immediately drawn to Iván…
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The efficacy and safety profiles of preventive treatment with Hemlibra (emicizumab-KXWH) are not affected by age or the presence of some simultaneous health conditions, that is, comorbidities, in older people with hemophilia A. The findings are the result of a post hoc analysis of pooled data from Phase…
Picture this: I’ve finally settled down for some peace and quiet with my wife. I’m holding a nice glass of wine, and she’s sitting in her favorite rocking chair. Our two boys have found refuge in their bedrooms, and all seems right in the world. I turn to Cazandra…
My youngest son, Caeleb, recently graduated from high school and, at 18, is legally recognized as an adult. This milestone brings a host of new responsibilities and rights: He can vote, buy and sell property, sue or be sued, and enter into binding contracts. Despite all our preparation for…
More than half the adults with hemophilia A in the Phase 3 GENEr8-1 clinical trial remain completely free of bleeds needing treatment, four years after a single dose of the gene therapy Roctavian (valoctocogene roxaparvovec-rvox). Also, activity levels of factor VIII (FVIII), the faulty clotting protein in hemophilia…
I cannot stress enough how profoundly heavy menstrual bleeding can impact everyday life. Imagine needing to find a bathroom nearly every hour, seven days a week. It can make certain career choices extremely challenging and disrupt daily activities, including school and athletics. When I was young, I didn’t realize my…
For the last two weeks, my family has celebrated a significant milestone for my youngest son, Caeleb. He graduated high school and now looks forward to life as a college freshman. My boy is excited about this new adventure. While I’m grateful that he celebrated a mountaintop experience, I…
Good mental health is crucial for caregivers of people with chronic illnesses. As a wife to someone with severe hemophilia B and epilepsy, I’ve seen firsthand how mental health matters to both patient and caregiver. I have to balance my husband’s needs with my own physical and…
Equipping yourself with knowledge is crucial for advocating for your hemophilia B healthcare, especially if you want to ask your doctor about trying a new treatment like gene therapy.
A pastor in the United Methodist Church agrees to participate in an itinerant system, in which a governing body, the Cabinet, moves clergy to where their gifts and graces are needed. I’m serving my fourth church at the First United Methodist Church of Belen, New Mexico, where…