We’ve just entered the season of Lent. This particular time in the church calendar is the 40 days before Easter. The goal is to remember divine deliverance and to prepare our hearts and minds for the joy of Easter. As a pastor in the Christian tradition, I encourage parishioners…

I love the smell of a freshly painted room. The roller soaks up the new color as it moves around in the pan, waiting to be rolled onto the wall in big, broad strokes. The walls must desperately need a fresh coat of paint to soak up the new color…

Hemophilia A patients at a single center in France reported high rates of satisfaction with Hemlibra (emicizumab) after a year of real-world use, a study has found. Patients reported improvements in health and life quality, as well as reductions in pain and bleeding with the therapy, but problems…

For the past few weeks, I’ve written about my youngest son’s hospitalization in Houston when he was 11 months old. In one of those columns, I shared about Caeleb’s complications from a bleeding episode because of his circumcision. Caeleb spent several weeks in the hospital and eventually had a…

Everyone experiences anxiety, yet not necessarily at the same level. When getting on an airplane, making a doctor appointment, or otherwise triggered, the anticipation and worry about what will happen can get the best of people. Some would argue that they do not have anxiety. It’s often these people who…

Last month, I had the pleasure of meeting another “HemoWife” at an event organized by the hemophilia organization that my husband, Jared, is involved with. Her name is Anne, and she’s married to Jundee, who has severe hemophilia A. She and I had a quick chat, during…

Researchers have identified immune system proteins that might drive the development of inhibitors, or neutralizing antibodies, against factor VIII (FVIII) replacement therapies in people with hemophilia A. These proteins, called complement proteins, appear to work collaboratively with danger signals that alert the body to critical situations in order to…

Last week, I discussed the unfortunate series of events that led my wife and youngest son, Caeleb, to check into Memorial Hermann-Texas Medical Center in Houston because of a bleeding episode. Caeleb, it turned out, had a high-titer inhibitor that prevented clotting from occurring, even with the help…

Hello, hiring managers and human resources (HR) professionals! I’m writing this column to you, as the spouse of a person with disability (PWD). My husband, Jared, has severe hemophilia B and a seizure disorder, and we worked together at the same company for a year. I’ve also seen him…

When my youngest son, Caeleb, now 17, was 11 months old, he had a bleeding episode that shook us to our core. We’d recently moved to New Mexico from Houston and didn’t yet know our new medical team. Because my wife, Cazandra, had promised to play oboe at…