Rarely am I the first to raise my hand in a class or give my opinion before others have shared. I do not want to look foolish or ask a dumb question. Most of the time, the question I held back was the same question others asked. I always seem…
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For the longest time, my son Caeleb being in a wheelchair was just part of the normal workings in my home. The constant bleeds that kept him immobile were in the forefront of my thoughts as I watched him struggle to get around. But after five years without bleeds,…
Treatment with an antibody designed to specifically block the anti-blood clotting, or anticoagulant, activity of an enzyme called activated protein C (APC) significantly reduced bleeding and related mortality in hemophilia A and hemophilia B mouse models, a study shows. The antibody, called HAPC1573, was also found to improve…
My husband, Jared, carries his hemophilia well. At first glance, he appears healthy, with a solid physique, and he actively engages in sports. The keloid scars running down his arms contribute to his rugged charm. Some might dub him a model hemophilia patient, an example to follow. During…
Spoiler alert: This story ends with a Golden Girl moment with my son. Picture it: Las Vegas, 2015. My youngest son, Caeleb, is 9 years old. He and I tagged along with my wife, Cazandra, for a special event for the bleeding disorders community. My boy, who…
Two members of our local hemophilia community passed away in recent weeks. My husband, Jared, knew one of them, who succumbed to an iliopsoas bleed. The other was an older member of the hemophilia organization my husband works with. He had a stroke that led to bleeding in…
Sometimes a person must learn a lesson the hard way before making changes in their life. My youngest son, Caeleb, is 15, and he is discovering some truths about his body. Due to extensive damage in his right knee and ankle from hemophilia, simple things such as running and…
An 87-year old woman with acquired hemophilia A (AHA) showed no adverse events or major bleeding events after starting on Hemlibra (emicizumab). The findings suggest that Hemlibra may be a better option for bleeding prevention in AHA patients than bypassing agents, the team said. The study, “…
As my COVID-19 recovery continues, I have questions. So I called public health expert Frank James, MD, to help. James is active in teaching, research, and medical practice. He is the health officer for San Juan County and the Nooksack Indian Nation in Washington state. He is…
The back-to-school season is one of my favorites. Shopping for new school clothes, finding the right backpack, and getting school supplies are part of the tradition. As my son Caeleb enters his freshman year of high school, it looks to be the start of a vastly different year. There is…