Genentech has issued a notice reminding healthcare professionals that its hemophilia A treatment Hemlibra (emicizumab) can interfere with some laboratory tests that measure blood coagulation. In the event that hemophilia patients on Hemlibra become infected with COVID-19, the company warns that not all tests will…
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1. Why is this survey being conducted? The purpose of this survey is to gather information from individuals with hemophilia so that Bionews and its partners can bring better understanding, advocacy, and provide our readers more relevant editorial content to the larger hemophilia community. 2. What will I do? If…
Why is this survey being conducted? The purpose of this survey is to gather information from individuals with hemophilia so that Bionews Services and its partners can bring better understanding, advocacy, and provide our readers more relevant editorial content to the larger hemophilia community. What will I do? If you…
If I had to define my self-quarantine in one word, it would be peace. I live in a peaceful, small, rural town. My street is quiet and my porch has a wonderful view. Three of us are at home — my husband, one of my sons, and me. My…
Columns
Focusing on Myself to Stay Sane
My husband is down with a bleed for the second time since the COVID-19 quarantine began. Â It hasn’t even been a week since he recovered from his latest abdominal bleed. We were only starting to settle back into our usual routine. I was happy to…
Columns
The Lure of the Open Road
“A River Runs Through It” is one of my favorite movies, but calling it that doesn’t conjure up just how deeply I feel about it. This movie is more than a favorite — it is like a cherished dream. With Robert Redford’s voice richly narrating the story of…
Blood visibly present in urine — called macroscopic hematuria — considerably increases the risk of hypertension in hemophilia patients with a family history of high blood pressure, and is not a “benign” condition for this patient group, a study reports. The study, “Macroscopic hematuria as a risk…
I can’t complain too much about my quarantine life. In my home are my husband, Joe, and 14-year-old son, Caeleb. There’s also my 14-year-old spunky, one-eyed, geriatric Corgi mix, Betty. I don’t have to worry about homeschooling little children or entertaining anyone. This is a good thing. But…
After handing over the development of the gene therapy candidate SB-525 to Pfizer, Sangamo Therapeutics has now concluded its collaboration agreement with Biogen to advance and market gene therapies for Alzheimer’s and Parkinson’s diseases, and other neuromuscular and other neurological disorders. Among other goals, the…
My husband, Jared, has a new resolution: to start keeping a bleeding journal. In his journal, Jared plans to write about recent bleeding episodes. Each entry will describe the sensation of a particular bleed, the affected area of the body, and steps he took to nurse the injury back to…