COVID-19 has upended our lives. It is hard. As an individual with a chronic condition, I find myself worrying about how it will affect me in ways that may be different from those of my neighbors or co-workers without chronic conditions. Thankfully, the hemophilia community has…
“I wish your ab would be better now,” I tell my husband Jared in a pleading voice. Jared is recovering from a bleed in the abdominal region that has taken a toll on his mobility for the past week. He’s already gone through a couple of factor infusions but still…
A few weeks ago, the news media broadcasted a video of Jill Biden — spouse of presidential hopeful and former vice president Joe Biden — physically blocking a protester in California from coming into contact with her husband. Not only did Jill put herself in between her husband and the…
As an introvert, coronavirus isolation is not problematic for me. I have plenty of projects to keep me busy. My graduate schoolwork is online, and the normalcy of school has been nice during these uncertain times. I hear about people who have a hard time in isolation, and honestly, I don’t…
As an old saying goes, it’s good to look on the bright side of life. It’s a call for us to remain optimistic in light of difficulties. There’s nothing wrong with having an optimistic view of things. In fact, it is important to see the “silver lining” in a bad…
Fear. Millions of people are living with insane amounts of fear due to the outbreak of the COVID-19 virus. This includes fear that the food supply will be limited, fear of catching the virus, and fear of lost income. There is a lot for our world to fear. But…
For the past three days, the capital of the Philippines has been on total lockdown due to the coronavirus outbreak. The country is now in a state of calamity as the number of cases continues to rise. Members of our government believe they are forced to take drastic…
I met my husband on the golf course. Now, one of my greatest joys is watching my daughter learn to play at that very same course. It is where I feel most at home. The course is not a relaxing set of fairways we see on Sunday afternoon broadcasts with…
Raising children is like building a house. For those of us who manage chronic illness and other disorders, our floor plans may look a little different, but at the end of the day, we all want our loved ones to be strong and sturdy, and ready to face life’s…
It’s a struggle to balance life with two disorders. I need to take daily medications for epilepsy while also self-infusing to treat internal bleeds. I recently suffered a horrible epileptic episode. My wife, Cza, and I were walking with our baby, Cittie, when I felt a strong aura warn…
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