Proteins from tardigrades — microscopic animals known for their ability to survive in extreme conditions — could be used to stabilize replacement therapies for hemophilia A, allowing treatments to be stored for longer periods of time without refrigeration, a proof-of-concept study shows. “Our work provides a proof of principle…

For children with severe hemophilia A who develop inhibitors — neutralizing antibodies that reduce the effectiveness of standard therapies — starting treatment to eliminate inhibitors earlier is associated with a higher chance of success, a recent study reports. The study, “Low-dose immune tolerance induction therapy in…

Trauma comes in all shapes and sizes. People often associate trauma with physical injuries, such as a horrific accident, amputation, or burn wound, but it can be caused by many other situations as well. For example, early childhood trauma can develop when kids grow up with an abusive parent. Trauma…

My mom passed away a few weeks ago. Over the past six years, it has been a great honor and privilege to be able to care for her. It was an opportunity to show love and appreciation for the person who helped shape my life and repay her for all she…

Through the COVID-19 pandemic, we became used to washing our hands frequently. As we held them under the faucet, we believed that disease particles too small for the human eye would be washed away, protecting us from catching the virus. Many medical professionals, in fact, told us that strict…

Online shopping is one of my guilty pleasures. In fact, as I write this column, I may have spent a significant fraction of the day swiping through hundreds of pages of items on my favorite shopping app. I don’t always end up ordering every item I find — I simply…

My wife and I stood around my son’s hospital bedside, waiting for the anesthetist to come in and prepare my boy for surgery. My son Julian required a port-a-cath due to how much medicine had to be infused into his system daily. He was about 1 year old…

I often put myself in uncomfortable situations, especially when the health and well-being of my sons are at risk. There was a time when my youngest son, Caeleb, 17, was in the hospital more than he was at home. During those years, dealing with his hemophilia and inhibitor became…

Conditions like hemophilia and von Willebrand disease are thought to affect more than 3 million U.S. residents. Across the country, patients, caregivers, advocates, and other supporters are coming together this month for Bleeding Disorders Awareness Month (BDAM) to participate in conversations and webinars, and share information about key community…

I’ve been sick these past few days with gastrointestinal issues. What began as a wave of nausea turned into an entire morning of vomiting, followed by a seemingly endless bout of painful diarrhea. I was confined to my bed, unable to get any work done, and subsisting on a diet…