Julian MacDonald, who has hemophilia, shares his perspective on owning your own care, and not feeling embarrassed to speak up if it is not satisfactory.
Transcript
Yes, that has happened recently. I confronted them. That was a solution for me. “Hey, this isn’t working for me. I feel like I’ve been kind of swimming alone out here.”
You have to be ready for it. Because at the end of the day, like, it is your care that you are ultimately in charge of it. And if something isn’t working, you are not out of step for saying something isn’t working. And you can communicate that in a way that isn’t confrontational. Well, you don’t need to fight with your doctor, but it’s feedback. It’s data. You never feel as though you are being too much. It’s your care. And if you aren’t satisfied with it, you have a right to get better care.
