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Setting the standard for hemophilia care

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Owning your care

ER care

Advocacy keys

Unexplained pain

Hemophilia treatment

Understanding treatments

Insurance challenges

Handling pain

Start fighting

Build confidence

Advocacy prep

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Thomas Graham, who has hemophilia, describes an experience with a hospital that understood hemophilia, and had protocols in place to properly treat patients.

Transcript

I’m living in New York City. I got my first real job and everything is going great. I sliced my finger accidentally. I was trying to prepare dinner, and I just major slice and I go to the ER, and this particular hospital had a protocol in place for taking care of people with hemophilia.

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I told the check-in clerk, “Look at my hand. It’s bleeding pretty bad. I have hemophilia.” They grabbed me and they rushed me into a room. There were 15 people in the waiting room. We just blew past them. They took me in and they treated me right away. And that was the first experience that I had with a hospital or treatment center, or any place that put hemophiliac treatment as a priority. That was a life changer for me, because knowing that that sort of protocol, that sort of consideration existed, made me aware to look for it. And when it didn’t exist, to insist on it.

More videos

Preparation makes hemophilia self-advocacy much easier
Confidence starts with understanding your hemophilia story
Don’t wait for others to fight your battles with hemophilia
The lasting impact of pain in hemophilia care
See more videos

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