Our Pets Teach Us the Darndest Things
My family loves dogs. My wife and I have never known married life without a beloved pet. They continue to…
Articles by Joe MacDonald
Focusing on Mental Health at This Year’s Hemophilia Federation Symposium
Fresh off the heels of the National Hemophilia Foundation’s virtual symposium earlier this month, I just attended another online…
How to Avoid the Shame and Blame Game
I will never forget the first time the Hemophilia Federation of America asked me to facilitate a discussion group…
My Takeaways From This Year’s Bleeding Disorders Conference
Despite the challenges associated with holding a large conference online, the National Hemophilia Foundation did a fantastic job at…
A Letter to My Sons
I remember the first time I put my hand in your hand. You seemed to smile out of a sense…
National Hemophilia Conference Provides Hope for the Future
Saturday afternoon marked the opening of the virtual edition of the National Hemophilia Foundation’s Bleeding Disorders Conference. I immediately missed…
Our Virtual Connectedness
As we continue to practice social distancing, I find it exceedingly difficult to stay connected to brothers and sisters in…
Beyond Diagnosis, We Found Community
I am the first person to insist that a diagnosis does not define my children. In my home, we never…
We Are the Experts of Our Own Stories
At times I struggle with documenting my journey as a caregiver for a loved one with a bleeding disorder.
The Roles We Play as Caregivers
Two weeks ago, my family moved back to New Mexico. Today, I find myself attempting to bring order to my…