Let Us Cross the Bridge
A few years ago, my family and I attended an inhibitor symposium in San Francisco. While the conference was jam-packed…
Rev. Dr. Joe K. MacDonald is a pastor in the New Mexico Annual Conference of the United Methodist Church. He and his wife, Cazandra, live in Belen, New Mexico, along with their youngest son, Caeleb, and two fur babies, Laggie and Hildie. Both of Joe’s sons (the oldest is Julian) have severe hemophilia A, factor VIII deficiency. Julian was diagnosed in 1996 and Caeleb in 2006. Joe serves on the Board of the Sangre de Oro Chapter of the National Hemophilia Foundation. Joe’s goal is to help his sons and others in the community use their voices to help improve the quality of life for those with bleeding disorders.
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A few years ago, my family and I attended an inhibitor symposium in San Francisco. While the conference was jam-packed…
Yesterday, I went through the pictures on my iPhone. I started with the most recent, moving backward, my heart beating…
There is no doubt that the new medicine Hemlibra (emicizumab) is a game changer in the treatment of…
For many years we tried to overcome my younger son’s reaction to factor VIII. No matter which medical product we…
I was with my son in a store recently when a coloring book for adults caught my eye. Ordinarily, I…
There is never a time that I do not worry about my sons. “MacDonald the Older” is 23, but not…
In my experience, raising two children with a chronic illness includes the usual worries that parents and other primary caregivers…
My wife and I were trying to find the perfect gift for one of our favorite people. We needed to…
Last week, I did something I never dreamed I would do: I taught “MacDonald the Younger” how to ride a…
When my son “MacDonald the Older” took over his care, I celebrated his accomplishment. “MacDonald the Younger” would not reach…
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