https://www.youtube.com/watch?v=rvJGuJunOOk In this video from the Bleeding Disorders Community, Patrick Lynch from Believe Limited explains what the Teen Impact Awards are and how it highlights the great work young people with bleeding disorders are doing in their schools, homes and communities. MORE: 13 fast facts about…

An Instagram account is using well-loved characters from children’s animated movies to create memes that highlight some of the issues people living with chronic illnesses face in their everyday lives. MORE: How kids can explain hemophilia to their friends As reported in The Mighty, the account was set…

Hemophilia is an inherited disease that prevents blood from clotting, a process that’s required to stop bleeding. According to the Hemophilia Federation of America, there are various complications that can arise from having a bleeding disorder like hemophilia. MORE: What to know about hemophilia symptoms.  Joint damage: One of the…

Whenever I hear the phrase, “Knowledge is power, ” I think back to the animated children’s television show Schoolhouse Rock. I loved how fun, catchy songs taught kids how bills are passed, the preamble to the Constitution, and my favorite tune, Conjunction Junction. Every episode started with an intro stating,…

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…

One of the greatest risks to people living with hemophilia is a bleed in the brain (or intracranial hemorrhage). Around 3 percent of people with moderate or severe forms of the disease will experience an intracranial hemorrhage — some will be a result of a head injury, others may experience…

In the bleeding disorder world, there are often opportunities to earn a few extra dollars. Research companies, pharmaceutical companies, and reporters will often reach out to members of the community to learn more about the disorder for their research. “Honorarium Offered” is a subject line in an email that will…

While living with a chronic illness can be challenging, there are ways that you can make life easier and live a happy and fulfilling life. Establishing good habits and routines takes time, but as Gunnar Esiason points out in his blog Own It, there are some “common sense…

If you are active on social media and have a chronic illness, you’ve probably come across the term “spoonie.” The word comes from a woman’s explanation of how she has to manage her energy levels each day.  As she was in a cafe at the time, she grabbed a bunch of spoons…

When you live with a bleeding disorder, there are many things that are out of your control. When the next bleed will happen, how long a hospital stay will last, what the results of the blood work will tell you, and how much you will pay per unit…