Sharing Stories Comes with Responsibility
I attended the Hope for Hemophilia conference last weekend and met some wonderful people. I delivered a keynote address…
Articles by Cazandra Campos-MacDonald
Children Hear More Than You Think
When my oldest son was diagnosed with hemophilia, it did not take long for my husband and I to…
Limited Choices Make for Hard Realizations
“I wish that I were normal,” my mighty warrior Caeleb said as we returned from his recent orthopedic appointment. I…
An Upcoming Appointment Stirs Up Painful Memories
I am a big list maker. Each day I start with a list of tasks that I need to accomplish.
A Letter to Those Who Mean Well
Dear Friend, We live in a world where people want to help each other. I know you mean well, but…
How to Connect and Share with Others in the Bleeding Disorder Community
Organizations such as the Hemophilia Federation of America and the National Hemophilia Foundation provide the bleeding disorder community…
It Costs Nothing to be Nice
Last year was difficult for my mighty warrior Caeleb. Moving to a new school in a town where everyone knows…
As Parents of Children with Invisible Illness, We Must Always Remain Vigilant
My 13-year-old son, Caeleb, is a victim of bullying. This school year had a better start than the previous one…
Cutting Remarks Can Harm Those with Invisible Illness
My mighty warrior, Caeleb, has been in great health for the past five years. Five years of the occasional ear…
I Am Grateful for My Son’s Marching Band Role, Despite His Joint Pain
My 13-year-old son Caeleb has had five years without experiencing any bleeding episodes. He developed an inhibitor at 11…