Columns

Putting Disability in the Entrepreneurial Spotlight

Over the past few months, my husband and I have been working extra hard on our jewelry retail business. It’s surprising how much work goes into running a small online store. My husband, Jared, thinks it’s because only two of us handle all aspects of the business, including…

Managing Chaos as a Family

If there is one word in the English language that drives me batty, it’s “chaos.” It implies a lack of control and an inability to stand on firm ground. It isn’t pleasant to be forced into a world that lacks any sense of stability. I must find a way to…

Women Need Early Factor Level Testing

Not all medical visits are created equal. Sadly, or perhaps horrifyingly, some women must fight to get access to the most basic of care, while others are fortunate enough to access it easily. While this is reality, it is not OK. It is imperative for the health of…

Embracing an Imperfect Life with ‘Amor Fati’

Life is awful from time to time. As someone with mental illness who is married to a person with hemophilia and epilepsy, I am no stranger to that thought. Various things can trigger me to ruminate on the thought that life is fickle and occasionally sadistic. It could be…

Answering the Tough Questions

As caregivers of loved ones managing chronic illness, we face questions that, when first heard, knock us to our knees. For my family, it was not so much a question as a statement. When “MacDonald the Older” was 4 years old, we set up to infuse through his port-a-cath…

Disability, Codependency, and Narcissistic Relationships

My husband, Jared, and I both share an interest in psychology and human relationships. We often bond over discussions about mental health and the way human beings interact. As a couple affected by hemophilia and mental health issues, we find such conversations therapeutic as we are able to share our…