Does it Feel Buzzy or Achy?
When your child is little and isn’t able to verbalize pain, you find yourself worrying constantly that you are…
Rev. Cazandra Campos-MacDonald is a pastor, author, motivational speaker, and encourager. She lives in New Mexico with her husband, Rev. Dr. Joe MacDonald, and youngest son, Caeleb. Their adult son, Julian, is living the bohemian life of a starving artist and goes wherever there is an audition. Her sons live with severe hemophilia A and inhibitors. Her older brother died shortly after birth due to complications from hemophilia. Cazandra writes candidly of raising two sons with a rare bleeding disorder. She believes storytelling is about redeeming the journey and connecting with others.
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When your child is little and isn’t able to verbalize pain, you find yourself worrying constantly that you are…
The National Hemophilia Foundation hosts an annual meeting with workshops, exhibits, and social gatherings for the bleeding…
“How many kids with hemophilia does it take to change a light bulb?” “None. Their mother will do…
There have been seasons when hemophilia became the center of my family’s universe. A bleed would start and…
Routine blood draws are a necessity when you have an active inhibitor. I try to get Caeleb’s lab…
It amazes me how people with a bleeding disorder just go with the flow, living their lives and…
Changes are happening in the bleeding disorder community like I never imagined. New product after new product has…
My youngest son, Caeleb, begins middle school this year. He is super-excited about starting the sixth grade, but…
Two likes. No comments. Just. Two. Likes. A friend, who has a son with hemophilia, told me about…
When my oldest son, Julian, started elementary school in 2001, I was encouraged to proceed with a 504…
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