Hemophilia and Mornings: Going Through the Motions
When you infuse through a port there are several steps to completing an infusion, as opposed to a…
Articles by Cazandra Campos-MacDonald
No Such Thing as Routine Surgery: Port No. 7 Is Here
My mighty warrior Caeleb is only 11 and has had six ports. One cracked, another became infected, one…
Because Words Matter, Is It Disease or Disorder?
Some words can be offensive. I’m not talking about some of the obvious, obnoxious words in the world,…
Does it Feel Buzzy or Achy?
When your child is little and isn’t able to verbalize pain, you find yourself worrying constantly that you are…
Parental Dynamics: Holding It Together
The National Hemophilia Foundation hosts an annual meeting with workshops, exhibits, and social gatherings for the bleeding…
Transitions: Teaching Our Young Adults to Manage Their Care
“How many kids with hemophilia does it take to change a light bulb?” “None. Their mother will do…
How Our Family Regained Control
There have been seasons when hemophilia became the center of my family’s universe. A bleed would start and…
Inhibitors and Blood Work: No Fear of Numbers
Routine blood draws are a necessity when you have an active inhibitor. I try to get Caeleb’s lab…
Bullies, the Bus, and Warriors: Reminders of Magnificence
It amazes me how people with a bleeding disorder just go with the flow, living their lives and…
New Products in the Marketplace: What Do I Look For?
Changes are happening in the bleeding disorder community like I never imagined. New product after new product has…