A Carer’s Experience of ‘Invisible Disability’ Discrimination
It’s almost 11 in the morning. My husband Jared and I are lined up at the mall-based satellite branch of our national health insurance system. By now, the mall has been open just less…
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
For my husband, video games and the hospital went hand in hand
My husband, Jared, often spent his childhood navigating two very different worlds. In one, he was a regular kid with big dreams and boundless imagination. In the other, he was a young boy living…
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Help Me Help You: A Carer’s Perspective
Last week, just after our wedding, Jared got a shoulder bleed. Jared has severe hemophilia B, but he does not get bleeds often. When he does, it’s almost like a vacation…
Entering Married Life with a Husband Who Has Hemophilia
In a week’s time, I’ll be a 20-something married woman. I’ll be transitioning from my current “single” civil status to writing “married” on government forms. Just a few days ago, I had the sudden…
A Field Guide to Dating Someone with Hemophilia
“Help, my partner has hemophilia! What now?” I’ve been dating a person with hemophilia for four years. In those years, we’ve had a lot of memorable experiences together, but as his carer, I…
Starting My Journey to Motherhood as a #HemoGirlfriend
My partner Jared and I are confined to our bed. He got a small ankle bleed from tripping on an uneven sidewalk yesterday, whereas I woke up with a terrible case of nausea —…
Remembering My Mom, a Brave Chronic Illness Fighter
My mother passed away a month ago. I thought I’d be ready after six years of dealing with her condition. I was wrong. In 2012, doctors diagnosed her with diffuse large B-cell lymphoma…
How I Chose a Man with Severe Hemophilia to Be My Life Partner
When I was younger, my parents would tell me to date a particular “ideal” man. This man need not be good looking, but he’d better be a good guy — no questionable values, capable…
